The teenager finally meets the donor who helped cure his genetic blood disorder
The 12 -year -old preference, who diagnosed Thalassemia at the age of six months, finally met his genetic match -ruin, a pharmaceutical management consultant who donated his stem cell during the Kovid -19 epidemic.
A 12 -year -old boy from Bikaner, who did a stem cell transplant to treat Thalassemia, first met his donor from 35 -year -old Rohit from Kanpur.
Thalassemia is a genetic blood disorder that reduces the body’s ability to produce hemoglobin. This requires persistent blood transfusions and can cause long -term complications. A stem cell transplant provides the only known treatment, by changing defective blood -making cells with healthy people from a matching donor.
Pratam was detected Thalassemia at the age of six months and was regularly infected for many years. His family had been looking for a matching donor for almost seven years.
It is only after watching the film “The Sky Is Pink”, a pharmaceutical management consultant Rohit, a non -profit organization, is registered as a donor with DKMS Foundation India, who fights against blood cancer and other blood disorders during the Kovid -19 pandemic.
He completed the process through a house cheek swab kit.
Such a successful match from such registration can lead to a stem cell transplant, the only treatment that can cure Thalassemia by changing the patient’s defective blood cells with potentially healthy people.
Dr, Director of Hematology at Max Super Specialty Hospital. Ish Kaul said, “Thalassemia puts a huge physical and emotional burden on children and their families, especially in India, where the incident is the highest globally.”
While blood transfusion is a temporary solution, stem cell transplant only provides further therapeutic tract. For many patients without a matching brother -in -law, a matching unrelated donor transplant becomes their only lifeline. However, the challenge lies in finding one million matches each.
Rohit was transplanted after being identified as a suitable unrelated match through DKMS. Dr. of his treatment, Dr. of Christian Medical College, Vellore. Vikram Matthews said that other remedies were required only after offering temporary relief.
“When the first first came to us, he was very young and playful. We gave him all support and treatment, but a stem cell transplant was his only curative option. Fortunately, he found an unrelated donor, and we can proceed with stem cell transplant,” Dr. Matthews said.
India reports more than 10,000 new cases of Thalassemia every year. While blood transfers are common, only one transplant can only cure the disease. However, it is difficult to find a matching donor, especially for Indian patients, due to lack of donors registered with equal ethnic backgrounds.
DKMS India President Patrick Paul said, “Record and strength remain major obstacles for therapeutic treatment.
“The story of the preference is a powerful reminder that Thalassemia can be effectively managed with early diagnosis and proper medical intervention,” Dr. Matthews said.
