South African TikTok star Bindri Boysen, 19, has died after a courageous battle with progeria, a rare genetic condition that causes premature aging. His mother B Boysen confirmed the news on Facebook. “It is with great sadness that we announce the passing of Beauandre, one of South Africa’s most beloved and inspirational young women,” they wrote. In the months before her death, Ms. Booysen underwent open-heart surgery and expressed a strong desire to celebrate Christmas with her family. The teen also had osteoporosis and aortic stenosis, which affects blood flow through the heart.
Despite suffering from progeria, which typically limits life expectancy, Ms Booysen defied expectations and became a beloved figure on social media. She has gained over 278,000 followers on TikTok, where her videos spread happiness and hope, inspiring many with their resilience and positive spirit. She became a symbol of awareness for progeria and other special needs, using her unique spirit to inspire thousands of people around the world.
Her story touched the hearts of many, and led to tributes from fans and fellow creators who praised her strength and positivity. The teen’s mother said a memorial service would be held to celebrate her life.
Responding to the news, one person wrote on Facebook: “So sad. What an inspiration she was. Fly high with a sweet girl like an angel.” Another person commented, “Prayers to the family for losing such a precious little lady.”
What is Progeria?
Progeria, also known as Hutchinson-Gilford progeria syndrome (HGPS), is a rare and serious genetic disorder that affects one in four million children and causes rapid aging and other health problems such as brittle bones. Becomes the reason.
Symptoms of Progeria:
- Children suffering from Progeria age rapidly, showing symptoms such as skin wrinkles, hair loss and joint stiffness.
- Affected children often experience growth delays and short stature
- Children with progeria may experience weight loss due to metabolic changes.
- Progeria increases the risk of heart disease, including heart attack and stroke
- Stiffness in joints and muscle weakness can lead to limited mobility and difficulty in walking.
Causes, Diagnosis and Treatment:
Progeria is caused by mutations in the LMNA gene, which codes for the lamin A protein. This protein plays an important role in maintaining the structure and function of cells. Diagnosis is usually made through genetic testing, physical examination, and imaging tests.
Most children with this condition survive until about age 14. However, the progression of the disease varies, and some may die at an early age, while others may live until their late teens or about 20. Although there is no cure for progeria, various treatments can help manage symptoms and slow the progression of the disease.
- Growth hormone therapy: To promote growth and development.
- Cardiovascular medications: To manage heart disease.
- Physical therapy: To maintain mobility and strength.
- Pain management: To reduce discomfort and pain.
